Who We Are

Empowering Choice, Upholding Rights, Transforming Lives.

Today, we want New York State to make good on the Olmstead Decision and uphold its 2013 promise.

We advocate for the constitutional right of people with disabilities to live in the community on their own terms and to choose the services they receive.

Mission

Vision

We aim to protect and improve the system of individual Self-Directed budgets in the New York State, as a key pathway to fostering integrated lives rooted in freedom of choice.

Goals

We work to make Self-Direction accessible to anyone who chooses it, assert the constitutionally protected rights of people with developmental disabilities to choose where and with whom they live, choose their services, and choose their goals, and put an end to policies that prevent the free exercise of choice.

Trends in Self Direction

Self-Direction’s success can be seen in the data.  Starting from fewer than eight thousand participants in 2017, the Self-Direction program has grown to over 28 thousand. Meanwhile, more than 100 thousand people use traditional services, but that number has been slowly declining.  

It is our estimate that having 28 thousand people in SD saves more than a half-billion from the Medicaid budget, and about $260 million from the State budget.

However, a false narrative has emerged that Self-Direction is an expensive program. The reality: Self-Direction is now one person out of five, and we spend only one dollar out of ten. The system has responded as if the growth of Self-Direction is a problem to be solved, with new ‘shadow’ policies that aim to make Self-Direction less attractive. In contrast, we believe the growth of self-direction should be celebrated.